Spring Cleaning

Our house has become so crazy overrun by toys, clothes and, weird enough, medical equipment. I'm not talking about thermometers and tylenol, no. I'm talking about cannulas and oxygen tanks, stethoscopes,  pulse oximeters, etc. Jax is doing so well now that I hardly use any of it anymore but it is still so hard to get rid of. After talking to many preemie moms, I know it's typical and probably somehow connected to the ptsd that most of us suffer for years after our preemies are born so at least I know I'm not crazy, but I still really want to get rid of it all to prove to myself that I am confident and moving forward in this rocky long journey. I decided to just allow myself to do so slowly and progressively so I am giving myself to the end of this year to be rid of it all. But to be sure I continually work towards this goal, I will make myself get rid of at least one thing every single week. This week I'm going easy on myself. (Week 1 and already trying to cheat the system) today, I am tossing out all the gauze. I was going to get rid of the tegaderm (transparent tape that held his cannula on his face) but anything that had to do with his oxygen, I find it the hardest to part with. I know that sounds so dumb because you would think I would celebrate while getting rid of it all, but for some reason, I have some crazy bizarre attachments  to all his oxygen-related equipment. Maybe in a few weeks for those things, so I'll just keep my first step a baby step with the gauze. So farewell gauze! I really hope I'm not suddenly going to need you tomorrow. (Whoa! See? I'm already regretting choosing the gauze. I might need it for something. I mean, the last time I used it was probably 6 months ago, but you never know right?) Ok, be brave. I can do this.  People live their lives every day perfectly fine without 2 pounds of gauze in their medicine cabinets. And......it's gone. Now I just have to run it out to the trash can before I decide to dig it back out. :) so, there you have it folks. I have officially proven that I can, in fact, move on from this crazy, sterile, medically equipped lifestyle I have lived since December 1, 2012. 

But, for more interesting news, Jaxon will soon be starting back in his speech therapy. We got all the issues worked out and are now just waiting for them to call to schedule his next session. Also, his eeg did not show seizure activity so we are waiting for an appointment with the neurologist to discuss other options. His developmental assessment with his high risk doctor went well. He did excellent with cognitive and fine motor skills. He was good with gross motor but of course, his speech was extremely delayed. But we are already in therapy and working with ent and audiology for that. He will have another abr as well as his follow up with ent and audiology next week.  His high risk doctor mentioned a possible assessment for hearing aids but that will depend on his abr results as well as the ent's opinion. Well, that's about it for the update. I just got a new phone (switched from iPhone to galaxy) so trying to figure out all the different ways to do things so I gotta figure out how to load pictures but I will ASAP.  For now, this will just have to be a boring colorless post, but later I'll add the photos and it will be ***mindblowingly***  awesome!!! I'm talking pictures of gauze in the trash can, medical equipment shoved in cabinets....it's really going to be epic! So hold on to the edge of your seats so you don't shoot through the roof in anticipation and hopefully within a few hours you can reread this with the photos and know that you are finally a fully satisfied and complete person.

Ok, just added two photos but can't get the others. The first one is of about a third of our supplies. The diaper picture is Jaxon diaper he wore the first 2 or 3 weeks in the nicu. Look how tiny it is in my hand! (It was in the med box so just had to revisit a bit)