Here are some photos from the day
Our family getting ready to share our story
Here we are with our team getting ready to walk
It was a lot of fun and I really encourage everyone to find their local walk and get involved. It's free and very little obligation but makes a HUGE difference for preemie babies everywhere.
Ok, so that is the end of my pitch ;)
I really don't have much to share as of right now but here is an Easter picture from the other day.
We had a wonderful holiday. For a very brief update on Jaxon, since my last posts about him, we have found he has some hearing loss in his right ear due to an extremely narrow canal as well as a misshapen canal and a tumor in the canal. His left ear is also narrow but not as bad as the right. His Chronic Lung Disease seems to be improving. He has not had any major issues with his breathing in a few months so that is AMAZING! He has been sick for a little over 2 weeks though. He's doing fine, just upset tummy that hopefully is about better now. He also is most likely having some seizures but based on my research, they don't seem to be harmful or severe. We will hopefully find out more specifics at his neurology appointment in a couple weeks. He has his developmental evaluation also in a couple weeks. He will be 17 months old next week. He is currently sitting, crawling, clapping and possibly saying "ball". When we give him his ball, about half the time he will say "BA-BA-BA" so we are pretty sure we finally got his first word!!! He also can cruise the furniture pretty well. He does not stand or walk yet so those are the things we are focusing on helping him with for now. He does not say any other words either. He will sometimes copy a simple sound if we try to get him to---like if we say "da-da-da-da", then about 25% of the time we can get him to say it too but he still can not make an "m" sound or any of the more complicated sounds like that. Only "d" and "b" really. Slowly but surely though, he is getting there. And with the hearing loss in addition to his prematurity, we don't expect him to be there yet anyways. My primary concern is his health and as far as that goes, he is a big healthy boy! He now weighs 20lb 12oz. Not sure where this puts him on the scale but I think it is around the 2 percentile as before.
These photos are all from a wedding they were in last week
As far as the other 3 kids, the twins are doing wonderful! Aubree can spell her name and has turned out to be quite a talented little artist. She loves to draw these flowers that are just BEAUTIFUL! The first time she showed me, I just stared at it then showed Donny when he got home from work and he couldn't believe it! Coloring and drawing and any kind of craft that involves either is her favorite thing to do. I got her a professional sketchpad to draw on and her own set of markers, colors and paints. We will see how she develops this interest. Nicholas is still as fascinated with planetary science as ever. He is also obsessed with angry birds and star wars. The way he grasps information just amazes me. Things about the planets that we haven't talked about in many months and he will randomly start talking about it and remember even small little details. I will have plenty of use for that memory in years to come! Annabelle will be 4 in August but she thinks she is the twins' age. (Well, until she sees Jaxon being babied, then she thinks she is HIS age.) She thinks she will be starting school in August and she is very excited about that! I keep telling her that she won't go until next year but it's not really registering with her. I work with the twins on spelling their names and she tries too but she's just not quite there.....well, that AND her name is a BAJILLION letters long! ugh! what were we thinking spelling it out the very longest way possible!? oy! In my next life, I will name them names like Joe or Max or Lee. Short and simple.
Well, Jaxon is crawling all over me so I can't really type now so gonna go!
<3 Me
